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MS liberation treatment a success for city resident

Published on September 29, 2010
Published on September 29, 2010
Topics :
Swift Current , Poland

Nearly a month after undergoing experimental liberation treatment for Multiple Sclerosis, Swift Current's Mike McIntosh has shown marked improvements after enduring MS symptoms over three decades.

McIntosh was part of a group of Canadians who traveled to Poland in August to undergo an experimental procedure which uses angioplasty to open a neck vein and drain blood from the head.

Scientists are beginning to explore whether Chronic cerebrospinal venous insufficiency (CCSVI) is a root cause of MS.

Having undergone surgery on August 26, McIntosh is reporting that the procedure has resulted in major improvements.

"I'm standing here. I've been standing here a long time. I couldn't stand here that long, not without grabbing you and holding you. I'm standing pretty steady," McIntosh said moments after a 45-minute presentation to a group at the Riverview Village Estates on Sept. 16.

"I can walk. I can get up and walk. I can sit all evening and watch tv without pain and spasticity in my legs. I still have a feeling in the back of my legs, like pins and needles, but it's nothing compared to what it was."

McIntosh describes the procedure as having dirty blood released from the brain.

"I know Dr. (Paolo) Zamboni talks about the garbage that the blood leaves in the brain, all the dirty blood - no oxygen in it...it leaves iron deposits in our brain. And so they pile up and so white blood cells attack them after a while."

"This is MS. This is what causes it. The blood just goes up to your brain and can't get out. There's no drain. You've got dirty blood with no oxygen in your head, stuck there all the time, only coming down the wrong places. Every time you lay down you get a headache. It's just not a good scene."

"We just have to study it and find out what it is," he said. "I hope they just get to work on this right away, because it sure helped me."

During his surgery, McIntosh said doctors made a small incision in his upper leg, and a tube was inserted through a vein to reach his jugular veins.

He said the vascular surgeon and neurosurgeon conducting the procedure told him "You might feel pressure, and then they pumped it up. At that point my eyes all went like there were clouds in them, like grey clouds and brown clouds and dust balls flying by, but I could see perfectly behind them. They were floaters."

"I said to the doctor I can see floaters. And he said, 'yes, normal. Yes, normal. It's normal.'"

He said it was unique sensation when they released the pressure during the angioplasty

"It was like a spray gun went off," he recalls. "And all the stuff in my eyes disappeared."

"It's just dirty blood. They were holding back dirty blood. I could see the dirty blood, and at that point they let it go."

McIntosh said his story, and the experiences of others following this experimental treatment, are too compelling to ignore.

"They are scientists and they impress that upon you all the time," he said. "We hope for the best results. It's a hope. They don't promise you anything and they tell you its experimental. And that's what it is. And it's a good experiment as far as I'm concerned."

"It's got to happen. There's too many of us coming back with good reports."

Comments

  • Username
    Robert Taylor
    - July 25, 2011 at 18:51:46

    “That just couldn’t happen here, but the sooner we develop written standards and best practices for the liberation procedure and observe them in practice, the safer the MS community will be”, says Dr. Gupte. “The way it is now is just madness. Everyone seems to be taking shortcuts. We know that it is expensive to keep patients in a clinical setting over a single night much less 10 days, but it’s quite absurd to release them the same day they have the procedure. We have always believed it to be unsafe and now it has proven to be unsafe. The thing is, are Synergy Health Concepts and other clinics doing the Liberation Treatment going to be changing their aftercare methods even though they know it is unsafe to release a patient on the same day? The answer is no, even after Mrs. Clarke’s unfortunate and unnecessary death. Therefore, they are not focused on patient safety…it’s become about money only and lives are being put at risk as a result.” Joanne Warkentin of Morden Manitoba, an MS patient who recently had both the liberation therapy and stem cell therapy at CCSVI Clinic agrees with Dr. Gupte. “Discharging patients on the same day as the procedure is ridiculous. I was in the hospital being monitored for 12 days before we flew back. People looking for a place to have the therapy must do their homework to find better options. We found CCSVI Clinic and there’s no place on earth that’s better to go for Liberation Therapy at the moment. I have given my complete medical file from CCSVI Clinic over to my Canadian physician for review.” For more information Log on to http://ccsviclinic.ca/?p=866 OR Call on toll free: 888-419-6855.

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    Jessica
    - June 27, 2011 at 09:32:18

    After 6 months of offering stem cell therapy in combination with the venous angioplasty liberation procedure, patients of CCSVI Clinic have reported excellent health outcomes. Ms. Kasma Gianopoulos of Athens Greece, who was diagnosed with the Relapsing/Remitting form of MS in 1997 called the combination of treatments a “cure”. “I feel I am completely cured” says Ms. Gianopoulos, “my symptoms have disappeared and I have a recovery of many functions, notably my balance and my muscle strength is all coming (back). Even after six months, I feel like there are good changes happening almost every day. Before, my biggest fear was that the changes wouldn’t (hold). I don’t even worry about having a relapse anymore. I’m looking forward to a normal life with my family. I think I would call that a miracle.” Other recent MS patients who have had Autologous Stem Cell Transplantation (ASCT), or stem cell therapy have posted videos and comments on YouTube. www.youtube.com/watch?v=jFQr2eqm3Cg. For more information visit http://ccsviclinic.ca/?p=838.

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    Jessica
    - June 27, 2011 at 09:30:00

    Dr. Avneesh Gupte, the Neurosurgeon at Noble Hospital performing the procedure has been encouraged by results in Cerebral Palsy patients as well. “We are fortunate to be able to offer the treatment because not every hospital is able to perform these types of transplants. You must have the specialized medical equipment and specially trained doctors and nurses”. With regard to MS patients, “We are cautious, but nevertheless excited by what patients are telling us. Suffice to say that the few patients who have had the therapy through us are noticing recovery of neuro deficits beyond what the venous angioplasty only should account for”. Dr. Unmesh of Noble continues: “These are early days and certainly all evidence that the combination of liberation and stem cell therapies working together at this point is anecdotal. However I am not aware of other medical facilities in the world that offer the synthesis of both to MS patients on an approved basis and it is indeed a rare opportunity for MS patients to take advantage of a treatment that is quite possibly unique in the world”. Autologous stem cell transplantation is a procedure by which blood-forming stem cells are removed, and later injected back into the patient. All stem cells are taken from the patient themselves and cultured for later injection. In the case of a bone marrow transplant, the HSC are typically removed from the Pelvis through a large needle that can reach into the bone. The technique is referred to as a bone marrow harvest and is performed under a general anesthesia. The incidence of patients experiencing rejection is rare due to the donor and recipient being the same individual.This remains the only approved method of the SCT therapy.For more information visit http://ccsviclinic.ca/?p=838.

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    Greg Mills
    - March 8, 2011 at 17:16:20

    CCSVI Clinic Receives Joint IRB Approval for Aftercare Protocol Study. The joint application between Noble Hospital and CCSVI Clinic has been approved through the IEC Institutional Review Board (IRB) that will allow researchers to use patient data to study their new extended and enhanced aftercare treatment protocol. The study hypothesis states that in MS patients with CCSVI undergoing endovascular treatment, those receiving the enhanced hospital aftercare protocol will have an improved long-term outcome over those patients not receiving this same protocol. The study is a Prospective, Longitudinal, Cohort Study in which patients are given the enhanced hospital aftercare and post-procedure protocol and then followed at regular 3 month intervals post-procedure, with the same measurements including symptoms and clinical examination, EDSS scale, Quality of Life Scale (QOL) and Doppler U/S. Dr. Anand Alurkar, an Interventional Radiologist has done thousands of Intra and Extra cranial angio-procedures over the past 10 years. His previous studies may indicate that it’s critical to position and movement control patients who have had a venous angioplasty post-procedure, monitor them for days afterward with various imaging techniques, for other symptoms of restenosis, and re-treat if necessary. Previously unpublished data for patients who have had venous angioplasty may support a much lower restenosis rate (< 20%) in non-MS patients with the same neck vein blockages, (while conventional liberation treatments of MS patients who undergo the procedure are treated mostly as outpatients) have a restenosis rate of over 50% (at 400 days). Currently, this means that over half of all of the MS patients who get the liberation therapy can expect to be looking to get the procedure done again within a year or so, which would not be considered a successful outcome. This may also be the biggest hurdle to overcome in getting the liberation therapy approved in North America short of clinical trials. If the positive effects of the liberation procedure disappear in many patients after only a few months, it would be reasonable to assume they are placebo unless data is collected to show otherwise. Apart from confirming restenosis rates, the study will establish whether it’s just as important to observe a strict protocol after the procedure for a period of up to 10 days to prevent restenosis. Dr. Avneesh Gupte, an Interventional Neurosurgeon involved in the study says “If our daily Doppler Ultrasounds post-procedure come up with anomalies that indicate the beginnings of restenosis in the veins, we’ll take them back and do another balloon angioplasty where the occlusion is starting to occur. It should be no different for MS patients than the non-MS patients but the key is really that they be position controlled, movement controlled, and then monitored for 10 days afterwards to be sure”. Dr. Don Simonson, the Principal Investigator for the study agrees; “Of course there are other reasons that patients restenose, depending on the condition of their veins in the first place, and operator inexperience, so we have designed a study that isolates the aftercare protocol because we feel it may be at least as important, and in any case well worth studying.” CCSVI Clinic is already sponsoring patients for this protocol with a 10-day stay in the hospital where patients will be imaged daily, post procedure. If there is evidence of re-occlusion, they will be taken back to the OR and re-treated. To comply with the IRB approval, once home, patients will be examined and/or surveyed at regular intervals by a Principle Investigator (PI) for several years after the treatment to study the changes. Patients will have regular consults with the surgeon who performed their procedure as part of the protocol. More and more MS patients are reporting initial success (including vascular and some neurological differences) as a result of the venous angioplasty (liberation therapy) but then regression to previous symptoms sometimes within weeks post-procedure. It is estimated that the failure rate of the “liberation therapy” may be 50% or higher, even through the most experienced and best-known surgeons. Consequently, there is increasing concern amongst patients that the liberation therapy hypothesis needs to include a post-procedure protocol that is more refined than simply releasing the patient from the hospital or clinic within hours or a day of the procedure. If the study hypothesis is correct, it means that there are many other considerations that indicate a post-procedure stabilization period, re-examination, and re-treatment if necessary. A recent intake of Canadian patients confirmed that they were most satisfied with the protocol. “I am convinced that CCSVI Clinic has been by far the best choice available”, says Nicole Magnan, speaking on behalf of her husband, Robert who underwent the therapy under the 10-day protocol. “And nobody in this world that can convince me otherwise. Robert came in here a broken man. He had no hope. His next step was the nursing home. Today he is walking with the aid of a walker and with consistent daily physiotherapy he will make more steps every day. Most importantly, we are hoping that the positive changes will be permanent and the doctors at CCSVI Clinic explained that. They are such special people that will remain in our hearts forever.” Regular research updates will be published on the CCSVI Clinic website. Questions may be directed toward the CCSVI Clinic administration at 1-888-419-6855. Persons wishing to participate in the study must agree to the informed consent process, qualify through an inclusionary and exclusionary process and agree to be followed for several years by the study research team. They must be prepared to travel to Noble Hospital in Pune, India, but all arrangements will be taken care of by staff associated with the study. Interested persons should ensure that applications are in as soon as possible since there are limitations on the funding for the study population. Please log on to http://ccsviclinic.ca/?p=830 for more information.

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  • Username
    rebecawatson
    - October 28, 2010 at 10:24:51

    I was diagnosed with Multiple Sclerosis back in 1983. I can hardly walk now and it seems my condition worsens every day. When I first heard about the Liberation procedure and its results from a friend, I thought United States would be the first to conduct the trials. I could never imagine the corruption involved. I ended up applying for this simple procedure in Poland and waiting.. The other options were to get it done in India. After researching the internet extensively, I came across http://www.ccsviclinic.ca/ . They are screening for CCSVI in Fargo, ND and have very affordable packages for the Liberation procedure in India. I called (404)461-9560 and spoke to their nurse administrator Lisa whose priceless support made me realize that we are not alone in the fight against MS. They are screening within the US and Canada, their medical travel package includes flight arrangements and help with the visas, world class accommodation and meals within their hospitals, the liberation procedure, a stent if needed, medications necessary, a site-seeing tour, Pre-and post-procedure supervision, Full medical file including copies of charts, screens, CDs of Venograms, blood work, EKGs, etc. Post Procedure Screenings, follow-up and consultation with surgeons for the next 6 months and so many other provisions Lisa told me about, I can’t recall however you might be able to find out more on their site.. http://ccsviclinic.ca/?page_id=564 . They are providing all of this at just $13000 as compared to the other companies that charge something like $20000 just for the procedure. You may also contact Lisa by emailing her at apply@ccsviclinic.ca or calling her on (404)461-9560. I am getting liberated mid-November and I am so very thankful to everyone at CCSVI Clinic for making this happen!

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  • Username
    Brenda
    - October 1, 2010 at 16:47:09

    Dagmar....Unbelievable is right! MS for 22 years here, am in chair now, ex Edmontonian, can hardly wait! everyday I have hope. (hope I win a lottery first tho)

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    Dagmar Lofts
    - September 30, 2010 at 10:32:00

    I am an Edmontonian that was liberated in Frankfurt, Germany on August 20th. Wow, what a euphoric day. It was such an unbelievable feeling to have a jugular 95% obstructed fully opened and the other at 80% blockage also fully dilated. You could hear the POP as the jugular opened and feel the dye run freely through the head. Unbelievably exhilarating. It took a day before I felt the warmth in my limbs. I guess that's what 21 years of MS does. It took a few days to evaluate my energy which is enorm. Also, I can walk and stand better and I have to learn to break the habit of looking for the nearest chair. My spasticity is better, not gone yet, but I take less Baclofen. I still take LDN because I need to see the proof that this has no assoc. with auto-immunity. In years to come this will be discovered but for now all MS people should be experimented on if they choose. It is the best experiment ever, a second chance at life!

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